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This book covers all forms of ethical assessment of research and innovation at the European Commission, including the implications of the concept of RRI which has emerged as a new framework to be used by the European Commission, and indeed including the newer concepts of Open Innovation and Open Science which are designed to subsume and reconfigure RRI. The book can be used as a 'how to' guide to understand and navigate the ethical and societal demands in developing European research projects; it also pushes the reflection and reflexivity further, bringing provoking new (and also some very old) perspectives to bear on ardent debates in studies of expertise, ethics and policy making.

Comment les valeurs comptent à la Commission européenne ? Cet article examine une dimension particulière de cette question en étudiant l' institutionnalisation de l'éthique à la Commission européenne. En rapport étroit avec la littérature sur l'expertise éthique dans l'élaboration des politiques, qui a mis en exergue de manière critique la « démocratisation » et l'« instrumentalisation » de l'expertise éthique, cet article sonde ses autres effets de reconfiguration. Mobilisant les études de l'expertise ainsi que de la politisation et des politiques de valeurs morales, en considérant des cas précis sur le terrain, il met en évidence les traits et les défis de la « réticulation de l'éthique » au sein de la Commission européenne et d'autres organisations.

The Ebola epidemic in West Africa between 2014 and 2015 was the deadliest since the discovery of the virus four decades ago. With the second-largest outbreak of Ebola virus disease currently raging in the Democratic Republic of the Congo, (DRC) it is clear that lessons from the past can be quickly forgotten—or be incomplete in the first instance. In this article, we seek to understand the health challenges facing marginalised people by elaborating on the multiple dimensions of marginalisation in the case of the West Africa Ebola epidemic. We trace and unpack modes of marginalisation, beginning with the "outbreak narrative" and its main components and go on to examine other framings, including the prioritisation of the present over the past, the positioning of 'Us versus Them'; and the marginalisation—in responses to the outbreak—of traditional medicine, cultural practices and other practices around farming and hunting. Finally, we reflect on the 'lessons learned' framing, highlighting what is included and what is left out. In conclusion, we stress the need to acknowledge—and be responsive to—the ethical, normative framings of such marginalisation. ; publishedVersion

El ISBN corresponde a la versión electrónica del documento ; This Opinion explores the transformations that citizen participation in health and medicine induces across different domains together with the resulting ethical implications. Trends and implications of citizen involvement are examined in light of new technologies that have been developed and that are emerging in the domain of health, as well as wider cultural, societal and political shifts, which are transforming the context in which health and healthcare are perceived, organised and delivered.